Over the course of the past year, Dre Katherine McGilton and Dre Jennifer Bethell from the University of Toronto asked Canadians affected by dementia—either personally or through their work—for their unanswered questions about living with dementia, dementia prevention, treatment and diagnosis. This study, also known as the Canadian Dementia Priority Setting Partnership, set out to identify the top 10 dementia research priorities, and to share them with Canadian researchers and research funding organizations.
Over 1200 participants shared their insights, thousands of questions were submitted and the shortlist was debated at an in-person workshop, held in Toronto on June 8-9, 2017.
The workshop brought together 28 participants from across Canada—persons with dementia, caregivers, health and social care providers and members of Alzheimer Societies.
Participants worked in small teams and as a group to discuss each question and decide what matters most to them.
The Federation was represented by Dr Nouha Ben Gaied, director research and development and Mrs Suzanne Bourget from the Alzheimer Society of Gaspesie Iles-de-la-Madeleine.
Here are the top 10 dementia research priorities, according to Canadians affected by dementia:
The Alzheimer Society Research Program will use these results to help bring the voices of Canadians affected by dementia into the research agenda. These priorities will also be shared with researchers and other research-funding organizations in hopes of stimulating more research in these areas.
The Canadian Dementia Priority Setting Partnership was funded by the Alzheimer Society Research Program as part of the Alzheimer Society’s commitment to the Canadian Consortium on Neurodegeneration in Aging (CCNA). Special thanks to our Steering Group and partner organizations for their involvement and assistance in the study.